Rachel
House — the facts
 The Childrens Hospice
Association Scotland (CHAS) was founded in 1992 by a small group of parents and
professionals who understood the needs of children with life-limiting conditions and their
families.
Rachel House, Scotlands only
childrens hospice, opened in 1996. It takes in boys and girls under 18, from all
over Scotland, who have a life-limiting condition. This means they are not expected to
survive into adulthood.
Very few have cancer. Most have progressive,
terminal conditions where their health deteriorates gradually for example muscular
dystrophy, cystic fibrosis, metabolic diseases and a host of extremely rare genetic
conditions.
When first diagnosed as terminally ill,
children can spend 21 days a year at Rachel House. Normally this will last from two days
to two weeks at a time depending on the needs of the family.
The hospice can accommodate up to eight children and their families at
any one time. Parents, brothers, sisters, grandparents, etc, stay with them, giving the
carers a much-needed break as well as the children.
In the final stages of illness, children can go
into Rachel House to die. While the treatment there is unsurpassed, there are no miracle
cures.
There are 40 full time staff plus more than 100
volunteers who contribute to all areas of work at Rachel House.
CHAS receives just £125,000 per year from
central government through the Scotland Office. Thats only nine per cent of the
running costs of Rachel House. The remaining money must come from their own fund-raising
efforts.
Rachel House is now nearing capacity, so a
second hospice is needed, to be completed in 2003. It will cost £10 million, and a site
has been earmarked at Loch Lomond.
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